We still don't have the results of the sleep study and I had to cancel his appointments for last Wednesday and Thursday because the family was getting taken down, one by one, with a nasty stomach virus. But some good news! The very clinic/ENT/Audiologist that is evaluating Garrett for the BAHA soft band, had an 'extra'. So we drove up to Dallas yesterday and picked it up. HE CAN HEAR! It's just a loner though so it fits seriously super superfluously goofy (say it out loud now) until we can get him a 'custom job' hat, like maybe a miniature ‘go to hell’ hat
He’d really look like a little old man then. But for right now we're just happy to have anything. Besides, the wonky red head band goes perfectly well with his goofy grin.
I'm sure glad someone on my BAHA Yahoo group suggested I ask the clinic about a loaner. Now my boy can hear for at least as long as they'll let us borrow it, until we work out all the mess of actually buying one. from. them.
And more potentially good news! ECI, God bless them!, seemed to be familiar with the IDEA Act. Now we just have to wait a few more weeks for their audiologist to evaluate Garrett and determine if the laws were in fact written to help him. Cus you know, maybe the Board of Education had someone else in mind. Do I sound bitter today even with all this good news? Sorry, I could probably use a bubble bath ... or even just a 3 minute shower.
And more potentially good news! ECI, God bless them!, seemed to be familiar with the IDEA Act. Now we just have to wait a few more weeks for their audiologist to evaluate Garrett and determine if the laws were in fact written to help him. Cus you know, maybe the Board of Education had someone else in mind. Do I sound bitter today even with all this good news? Sorry, I could probably use a bubble bath ... or even just a 3 minute shower.
Good morning! Good luck to Gus on his first day of school. Everything seems to be going well and obviously Garrett is getting the best care possible - thanks to you and your family. Through all the storms that precious child has to face he will be fine because he feels the unconditional love you, Ben, your children, your parents, friends and family give Garrett. He is so blessed. It also helps that God is breathing every breath with him and you and he will give all of you the strength you need. You are doing such a marvelous job seeing that Garrett's taken care of. I know you love every minute of it but it doesn't make the sleep deprivation or fatigue any easier. Don't forget to take care of yourself, Ben, children, etc. Good luck with his surgery next week. Thanks for the postings. I love you all very much, Cathey
ReplyDeleteYou're so right Cathey! There is lots of love to go around in this family! Thank you for being part of it!
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