Monday, April 4, 2011

Return of the Baby Hulk


This surgery better be worth it. Garrett is miserable. I can tentatively call it successful because they were able to get both the tonsils and adenoids without anything too drastic, like a trach. But we won't know for several more weeks, when the swelling has gone down and he can have another sleep study. The real test will come this winter. Hopefully he won't spend the entirety of it sick and tired.

As expected, it was a difficult intubation. I would suggest to any parents of children with compromised airways to push for the anesthesiologists to use the Fiberoptic Endotracheal Intubation. Really push. I think this could have prevented the majority of his pain and swelling, leading to his inability to breath and even-more-severe sleep apnea.

Poor Garrett is just not good with "procedures". He fights everything. It's hard to judge his pain because he reacts to getting his temperature taken the very same way he reacts to getting an I.V. And he is so strong, it makes every fight a traumatic ordeal that doesn't end until every trace of the offense is removed. He wont drink out of the bottle that has a little sticky residue on the side from the hospital name tag. He was very cooperative and held perfectly still while the nurse unwrapped his makeshift cast that kept him from destroying his I.V., but as soon as she put on the little tiny band-aid he went ballistic. He wanted no reminders! He wanted everything gone gone gone.

A warning to parents whose children might need this operation; the nights are horrible, truly frightening. They say that a person will die if they go more than 3 days without sleep. Well, I guess 20 second naps are good enough to keep you alive. For a full week, 7 long days and nights, there was simply no way for him to sleep and breath at the same time. The swelling in his throat was so bad that the instant his muscles would relax in slumber, his airway would become completely shut off. On his tummy, on his side, sitting upright; there was no way to potition him or hold him that gave him any relief. We even ended up back in the ER after just a day of being home. I wanted to just stay at the hospital. Watching your not yet 2 year old pass out from exhaustion then just stop breathing over and over and over again, day after day, shouldn't be acceptable. But they kept telling me his oxygen levels were ok and this was normal, there wasn't anything left to do but weather it out.

Now, at one week exactly, almost to the hour, Garrett is starting to do SO much better. He is finally off the strong stuff, eating and drinking normally, his breath stopped smelling like a dumpster of dead frogs in the hot sun, and his fever broke. The apnea is about the same as it was before the surgery, he still saws some logs but over all his sleep is pretty sound. Now, Ben and I just need to catch up on our own Z's and Garrett needs to gain back all the weight he lost, then things will be better than ever. They better be.

Saturday, March 12, 2011

Spring brings clear skys and sinuses!

The recent CT scan showed that Garrett's adenoids are apparently "huge", and not only will this block his already small airway, it may be contributing to his chronic sinusitis, because the obstruction disrupts the process that removes bacteria normally present in the nasal passages, and the bacteria begin to multiply and invade the lining of the sinus... the area can't drain properly. So after a winter of thick-green-discharge-clogged sinuses and sleepless nights, it wasn't hard to see the benefits of a tonsil/adenoid-ectomy. We have an appointment for March the 24th. It will only take about 20 minutes but we will be staying over night so they can monitor his post-op breathing. Just an extra precaution that I appreciate.

Until then, we're all just enjoying spring break.

Thursday, January 27, 2011

Well hi there.

Garrett and Gus had their annual Craino team check-up Monday and it was nice and boring. Dr. G came in, talked to them for a sec, then said "They look great. See you in a year." That's just what I like to hear.

Garrett doesn't seem to have grown out of his jaw distraction yet, but when he gets the slightest bit of a cold , which is pretty much December through March, his sleep apnea comes back with a vengeance. We do a whole lot of torturous procedures each night to try to help his breathing, but whether the benefits outweigh the cons is questionable... I know what his nightmares are about. We're going to be getting a CT scan soon to check out his sinus cavities and make sure there are no structural blockages, preventing proper drainage of these infections. Hopefully, it's an easy fix like enlarged adenoids or tonsils.

His receptive language in pretty much on track; he understands what we're saying and can follow simple directions. And while he is learning several words and signs, his expressive language is lagging. But... who has two thumbs and couldn't care less? This girl! Why talk when you have 4 devoted servants that immediately bring you what you want at the mere twitch of an eyebrow?

So, that's our update. See you in a year.