Monday, August 17, 2009

Results are in

He does have severe obstructed sleep apnea and will get a jaw distraction in a few weeks. If you want to learn what it's like to have a jaw distraction, there is a great Blog about a plucky little girl that had the same procedure here. If you go read it scroll all the way down and start reading from the bottom up, in chronological order. This little girl has had a few more problems with Treacher Collins than Garrett. We don't expect him to have quite as many setbacks with the procedure, i.e. trech/breathing problems and his jaw doesn't need to grow quite as much so hopefully the turning phase won't last as long, the recovery will be shorter and the jaw might not grow 'down' causing the mouth to temporarily gape open. We will be talking to our surgeon early next week about all the details. Until then, he continues to do amazingly well. A happy, scrappy little thing that smiles the biggest when I'm pretending to lecture him about not exercising his neck muscles often enough.

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